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relief to us as some of the previous anti-seizure medications John had been on had potentially severe and permanent side effects. We have also been carefully monitoring his levels of his other medications and have not seen any significant drug-drug interactions. We continue to hope that this new medication is the missing key to John’s seizure control. Regardless of the outcome, we will remain deeply grateful to the efforts of these physicians and scientists who have so generously shared their expertise, time and resources. Fourteen-year-old with intractable epilepsy with nearly 100% reduction in seizure frequency on chylobinoid product My daughter first exhibited signs of epilepsy around her second birthday. Soon after she was diagnosed with Localization-related (focal) epilepsy and epileptic syndromes with complex partial seizures, with intractable epilepsy. She is now 14 years old. Over the last 12 years, she had has countless seizures, some days up to 36 a day. Since her diagnosis she has been on a multiple different cocktails of prescription drugs that have all failed to control her seizures long term. At the age of 9, she has had brain surgery, Craniotomy Stealth Neuro Navigation, with little to no improvement in her condition. This procedure actually removed a tiny portion of her brain. Afterwards, her partial seizures progressed to grand mal seizures. For the last 5 years she been on multiple medications such a Depakote, Lamictal, and Topamax and continued to have daily seizures. Nothing we tried helped, including a visit to Mayo clinic and attempting the ketogenic diet. Nothing has ever helped for longer than a few months. My daughter has missed countless days of school, months at a time. For the last two years she been homeschooled due to her non-stop seizures and various side effects of her drugs including the inability to focus, double vision, and drowsiness. Over the years I had heard about the benefits CBD oil from many people with epilepsy, but was unable to find anyone who would allow us to give it a try until I met Ken Slepicka who told me about chylobinoid drug program and introduced us to Dr. Smith and Dr. Palmer. Since starting on the chylobinoid drug program I’ve seen substantial improvement across the board with my daughter. Not only have her seizures substantially decreased, we have been able to wean her most harmful drug, Depakote, whose side effects include serious liver damage, by half over the last two months. Her quality of life as increased substantially. She has been able to attend full days of school. She is more alert. Her seizures have decreased from 26 a day to zero. I am beyond happy that the harmful drugs that have had little to no help and many side effects can be replaced by a natural and safe alternative. I could not be happier to be part of the research the chylobinoid drug.
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